Today is Thursday 27th July 2017.

News


PLEASE PLEASE KEEP RAISING AWARENESS 

Headaches may mean your sight is at risk. See the entry for Giant Cell Arteritis on the page 'What is PMR and what is GCA?' for more information and the warning symptoms.


Dr Sarah Mackie Associate Clinical Professor and Honorary Consultant Rheumatologist at Leeds hospitals spoke about PMR and GCA at our AGM on Friday 24th March 2017. She is a rheumatologist in a five-year NIHR Clinician scientist Fellowship, which centres around ways of improving the diagnosis of polymyalgia rheumatica (PMR). The talk was excellent and we are looking for a speaker for next years AGM. More information will follow.


ALL CHANGE!

From 01 October 2016, Lorna Neill has succeeded Bea as Chair and Michael Benneworth has taken over as secretary.

The Trustees are grateful to Bea for all the work she has put in on behalf of the charity. She stepped down as Chair after organising the successful Glasgow meeting for medical professionals on Friday 30th September 2016. Professor Dasgupta rolled out the new GCA guidelines, supported by Madeline Whitlock, Clinical Nurse Specialist and with the immense help of the Scottish Society of Rheumatology. It was very well received and has raised the profile of the charity in the Glasgow area.


LATEST NEWSWIRE

Issue 21 (Spring 2017) was posted to those who receive a hard copy on 24th April 2017. If you want to download a copy then click HERE. The Scotland contribution can be found on page 9. 


NEW PATIENT EXPERIENCE

There is a new story on the Patient Experience page. For previous entries please see Our PMR-GCA Stories. Please do let us have your story, which allows everyone to see just how you have found things - for everyone who has either (or both) conditions, the progress will be different but maybe someone else can get inspiration from you?


ABERDEEN SUPPORT?

June 2016: In the autumn we are planning to contact members in the Grampian area to see whether there is an appetite for a Support Group in Aberdeen. If you are not a already member but are interested, or if you are from another authority but can travel into the Granite City, please email info.scotland@pmrandgca.org.uk, use the contact form or call the Helpline with your contact details so that we can keep you informed.


UPCOMING EVENTS

We aren't aware of anything at the moment but if you know of something that would be of interest to our members or readers of this website, please email us at info.scotland@pmrandgca.org.uk.  


FUNDRAISING!!

Do you have family or friends who are prepared to share their talents and raise funds for the charity so that we can both continue and expand our work? Maybe they are part of a community choir or orchestra or band? Perhaps they would like to skydive or undertake a challenging walk and wanted a cause?

Please do ask around and see if anyone is prepared to help. We can provide some publicity material and sponsorship forms if needed.

Either call the helpline (0300 777 5090) with your contact details and we will call you back  Or email info.scotland@pmrandgca.org.uk


Although PMRGCAuk has changed its visual identity to Polymyalgia+GCA, Polymyalgia Rheumatica and Giant Cell Arteritis Scotland (PMR-GCA Scotland) will retain its separate identity and original name as will PMRGCAuk North East Support.

Research papers and links are now being added HERE 


We are including information in the Self Management section that we believe may be of help and interest. 

 

 

 



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I regret that we are not currently set up for Charity Choice to collect Gift Aid on our behalf but if you are a taxpayer and are happy to apply this to your donation, click the link GIFT AID FORM which can then be posted to us at 7 Hamilton Place, PERTH PH1 1BB.
If you prefer to donate via BACS  please email info.scotland@pmrandgca.org.uk and we will provide the necessary details.