Today is Sunday 19th August 2018.
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LATEST NEWSWIRE

Issue 25 (Summer 2018) will be posted out around Friday 17th August. If you want to download a copy then click HERE. The Scotland contribution can be found on page 9. With help from a volunteer they were posted Monday 13th. Thank you Liz.


An article from the Daily Mail on Tocilizumab which was published on 9th July 2018 can be found at Tocilizumab.


PMRGCAuk has a video channel at https://vimeo.com/channels/1352513


PLEASE PLEASE KEEP RAISING AWARENESS 

Headaches may mean your sight is at risk. See the entry for Giant Cell Arteritis on the page 'What is PMR and what is GCA?' for more information and the warning symptoms.


ADVANCE NOTICE AGM 2019

The 2019 AGM is booked for Friday April 12th in thestudio, 67 Hope Street, GLASGOW  G2 6AE. Room booked is the "climb" on 9th Floor (lift available). Speakers are Kate Gilbert PhD author of Polymyalgia and Giant Cell Arteritis: a survival guide and Mayrine Fraser, Scottish National Development Manager for The National Osteoporosis Society.

Book the date in your diary - it will be very good.


Tocilizumab. NICE, the National Institute for Health and Clinical Excellence for England, has approved the use of Tocilizumab for cases of Giant Cell Arteritis. There has not been a new drug for this disease since steroids were first used 70 years ago. Thousands of patients have had no option up to now but to take high doses of steroids for several years.

Request to SMC (Scottish Medical Council) for approval in Scotland is in progress.  Decision day is Tuesday August 7th in Glasgow. The Chair and Secretary are going to the meeting. We will hear the outcome early in September.

To see the report on the trial of Tocilizumab in Giant-Cell Arteritis issued on 27th July 2017 go to  Research and clinical guidelines.

Rheuma Research Roadshow - Kirkcaldy, Fife Wednesday November 1st 2017

This "research roadshow" event brought together patients, clinicians and researchers together to find out what is happening locally and around the country, and how doctors and patients can work together to manage PMR and GCA more positively. The focus was on 'Improving Outcomes and the Patient Experience'..


 

UPCOMING EVENTS

We aren't aware of anything at the moment but if you know of something that would be of interest to our members or readers of this website, please email us at info.scotland@pmrandgca.org.uk.  


FUNDRAISING!!

Do you have family or friends who are prepared to share their talents and raise funds for the charity so that we can both continue and expand our work? Maybe they are part of a community choir or orchestra or band? Perhaps they would like to skydive or undertake a challenging walk and wanted a cause?

Please do ask around and see if anyone is prepared to help. We can provide some publicity material and sponsorship forms if needed.

Either call the helpline (0300 777 5090) with your contact details and we will call you back  Or email info.scotland@pmrandgca.org.uk


We are including information in the Self Management section that we believe may be of help and interest. 

 


Donate Now Button
I regret that we are not currently set up for Charity Choice to collect Gift Aid on our behalf but if you are a taxpayer and are happy to apply this to your donation, click the link GIFT AID FORM which can then be posted to us at 7 Hamilton Place, PERTH PH1 1BB.
If you prefer to donate via BACS  please email info.scotland@pmrandgca.org.uk and we will provide the necessary details.