Today is Friday 23rd June 2017.

Our PMR-GCA Stories and Yours

On this page we will be including stories from people with Polymyalgia Rheumatic and Giant Cell Arteritis relate their experiences. One of the things I noticed while reading through these stories is that the outcomes aren't bleak; with support from the medical professionals, friends, family, fellow sufferers and this charity people are getting through. Click on the first word (BLUE) and the story will be expanded

If you have a PMR-GCA story that you'd like to share, whether as someone who has (or has had) the conditions or perhaps someone who has lived with another who has them, then please email it to info.scotland@pmrandgca.org.uk. Sharing experiences does really help.

  1. PMR The symptoms appeared suddenly. One morning I couldn’t get out of bed...
  2. PMR hit me suddenly, waking up one morning full of aches and pains and flu-like symptoms....
  3. PMR & GCA I was tidying up after breakfast and said to my husband, “I’ll have to go and lie down, I don’t feel very well”. I thought I had flu...
  4. GCA I had been feeling a bit off and suffering from intermittent headaches and toothache, but I put it down to doing too much and ignored what was going on...
  5. PMR & GCA I had my first PMR symptoms in October 2008...in January 2010 I began getting GCA ...
  6. PMR & GCA I felt very strange and had a dry cough. ...
  7. PMR My first reaction was that I was going to beat it. I tried to continue with my life as before and became totally exhausted and depressed. ...
  8. PMR 3 years ago I was diagnosed with PMR at the age of 56, it was only affecting my arms & shoulders but was very painful & I couldn't raise my arms above waist level.. ...
  9. There was some uncertainty about the diagnosis and development of this patient's contribution so we have decided it probably doesn't add value as you work through these stories and look for help .
  10. PMR Over time, I developed minor stomach problems due to excess acid and a visit to my GP was required. ...
  11. PMR In early 2008 I was a fairly fit specimen for my age, male and just turned 61. ...
  12. GCA My story began on 6th November 2007. I had been feeling strange for a while, and felt I had flu but nothing definite
  13. GCA I was washing the dishes after lunch when I felt a pressure in my breast like indigestion. After about ten minutes I had an awful pain in my jaws which eventually went round the back of my head ..
  14. PMR As the journey progressed however, I was increasingly puzzled by a pain that wouldn’t go away…. It was as if someone had kicked me very hard in my upper legs ... (There is light at the end of the tunnel!)
  15. GCA I became aware of a constant quite mild ache behind my right ear and upwards, settling above my right eye...
  16. GCA It all started with a headache that got increasingly worse. Over a two month period in which sleep was reduced by pain to two hours a night...
  17. PMR & GCA my head hurt when I touched it, just combing my hair was so painful. My appetite disappeared, my jaw became tired and I couldn’t chew (totally unheard of for me!) and...
  18. PMR & GCA with some sight loss I started to experience some really bad pains in my back...To anyone who has recently been diagnosed with PMR, don’t get despondent, there is definitely light at the end of the tunnel.
  19. PMR I have been a lifelong cyclist...how to manage this and fatigue...one man's story.