Today is Wednesday 20th September 2017.
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Research and Clinical Guidelines

From time to time the charity becomes aware of ongoing research into both the conditions and related material. We will add it here once we are confident with the source. Wherever possible we provide a link to the originating website. 

If you become aware of something new, or if you notice that our links are outdated (or don't work) please email us at info.scotland@pmrandgca.org.uk and we will do our best to address the issue.


Trial of Tocilizumab in Giant-Cell Arteritis.

CONCLUSIONS:

Tocilizumab, received weekly or every other week, combined with a 26-week prednisone taper was superior to either 26-week or 52-week prednisone tapering plus placebo with regard to sustained glucocorticoid-free remission in patients with giant-cell arteritis. Longer follow-up is necessary to determine the durability of remission and safety of tocilizumab. 

For full report dated 27th July 2017 read HERE.


 

Conference: 30 September 2016 in the Teacher Building - Glasgow 

Delightfully there was good attendance at the SSR supported conference for interested clinicians from Primary and Secondary Care - GPs, Practice Nurses, District Nurses, Rheumatology Consultants, Junior Doctors, Clinical Nurse Specialists and Allied Health Professionals etc. entitled "The diagnosis and management of GCA: New and updated guidelines".

Professor Bhaskar Dasgupta talked about the development of best-practice treatment (you can download his presentation HERE) followed by Madeline Whitlock who took us through the nursing  perspective (and her's HERE).


2015 The full report for the management of polymyalgia rheumatica: a European League Against Rheumatism/American College of Rheumatology (EULAR-ACR) collaborative initiative can be downloaded HERE and a summary of the recommendations can be downloaded HERE

Guidelines published by the British Society for Rheumatology (BSR) and British Health Professionals (BHPR) in Rheumatology for Polymyalgia Rheumatica and Giant Cell Arteritis (correct as at Aug 2014) please click these links PMR or GCA


You may have seen reference to the 'Quick and Kirwin' paper on various forums and websites. Please follow THIS LINK to access a copy. Of particular interest please see the PMR and GCA treatment regimes which can be found on page 344 and 346.


Arthritis Research UK periodically publish papers for health professionals and students under the general heading 'Hands On'. In Spring 2014 the topic was Polymyalgia Rheumatica and is a very worthwhile read that can be found by following THIS LINKIf you wish, a PDF can be downloaded from there. Other useful subjects in this series that may be of interest if you have other conditions. 


A clinical review of Polymyalgia Rheumatica co-authored by Dr Sarah L Mackie (clinical lecturer) and Professor Christian D Mallen can be found by following THIS LINK


FATIGUE

Dr Neil Basu (keynote speaker at our 2016 AGM and Annual Meeting), has provided a copy of his presentation on fatigue 'Unravelling Vasculitis Related Fatigue' which is attached HERE


If you would like to help The Marijke Foundation in their attempts to generate more international public awareness and media attention for the issue of Early Recognition/Diagnosis of the diseases GCA and PMR (and MGCA) please see the following.  

Patients who already have a diagnosis Giant Cell Arteritis and/or Polymyalgia Rheumatica and are being treated or already cured, are invited to fill out the Feedback Symptomatrix'

Their data are important for the epidemiological research of the Marijke Foundation. This research is the source for continuous fine tuning and improvements of the Diagnostic Symptomatrix. 

The charity has had a close working relationship with the foundation for many years but please be aware that they are an independent organisation so any communication you have with them will not be shared with PMR-GCA Scotland.


If you are having difficulty retrieving a printed version of any of these documents to take to your GP or other medical practitioner, please contact us on info.scotland@pmrandgca.org.uk giving us your email address and location and we will send on to you.